This two-year-old girl suffers from a rare genetic mutation, and then a group of students changed her life

There are too many people suffering in the world and too little kindness to stave off the suffering.

Not entirely true.

Kindness and empathy aren’t dead and here’s proof to show that it still thrives.

Like a group of student volunteers from the John Hopkins University’s engineering department who created a bespoke walker for two-year-old RoseLynn Lidy, from Maryland, who spends most of her time lying down, being held or sitting in a high chair.

Posted by V-LINC on Tuesday, October 24, 2017

The reason why she is entirely immobile is due to a condition she suffers from called the Cornelia de Lange Syndrome—a rare genetic developmental disorder that affects many parts of the body. The severity of the condition and the associated signs and symptoms can vary widely, but some common symptoms include distinctive facial characteristics, growth delays, intellectual disability and limb defects.

Posted by Annetta Lidy on Wednesday, December 27, 2017

“It’s a spontaneous genetic mutation and it happens during formation,” said Rose’s mother, Annetta Lidy as reported by KOAT Action News.

However, RoseLynn’s twin sister Georgia wasn’t born with the condition.

Posted by Annetta Lidy on Sunday, May 15, 2016

“The spontaneous genetic mutation happened in Rosie and didn’t happen in Georgia,” Annetta added further.

It's Giving Tuesday! Please consider making a donation to No Shave November to support Camp Open Arms and help kids with…

Posted by Annetta Lidy on Tuesday, November 28, 2017

At the time of her birth, RoseLynn’s parents were told that her chances of survival were slim. RoseLynn, in fact, suffers from a range of physical, cognitive and medical issues which has led to her immobility.

Posted by V-LINC on Tuesday, October 24, 2017

RoseLynn’s therapist recommended that she learned how to walk. At the age of two, she is 24 inches tall and weighs just over 11 pounds—far too small to sit properly supported in commercially available walkers.

What she needed was a custom-made walker that would fit her small frame which, in turn, would also assist her with the core and leg strengthening.

Posted by Annetta Lidy on Friday, May 12, 2017

This is when V-LINC, a Baltimore non-profit group that matches people who have special challenges caused by disease or disability with volunteers who can design and build custom solutions for them, came in the picture.

Wondering what all the BUZZ is about with No Shave November?Two years ago we started seeing an orthopedic doctor for…

Posted by Annetta Lidy on Friday, November 3, 2017

V-LINC helped Rose find her Santa Claus in the student members of ASME (American Society of Mechanical Engineers) John Hopkins University Chapter, who took on RoseLynn’s project and decided to help RoseLynn find her custom-made walker via the non-profit’s “Designing Our Future” program.

Niel Leon was named Volunteer of the Year last night at V-LINC's Annual Volunteer Recognition event held at the Vollmer…

Posted by Norma Theo Pinette on Friday, May 1, 2015